Flu vaccine

19/10/2019

It's that time of year again

National conversation on rare diseases

16/10/2019

Baroness Nicola Blackwood, Minister for rare diseases at the Department of Health and Social Care invites people to join in the conversation about rare diseases

World HAN Day

15/10/2019

As a founder member of PACIFHAN we celebrate World HAN Day 

Invisible Disabilities Week

14/10/2019

13 - 19 October 2019

Resource for those affected by the FK Calea supply issue

20/09/2019

Information on the supply issue to people on home parenteral nutrition with FK Calea

Update!

12/09/2019

Latest update on the Calea PN supply issue

Calea patients on replacement bags

07/09/2019

Letter to patients with Calea on parenteral nutrition who may be receiving a different parenteral nutrition bag - latest information update

Have your say!

06/09/2019

Opportunity to take part is now closed - thanks to everyone who responded.

Reply to PINNT

28/08/2019

Sharing the response received following our letter to Simon Stevens, Chief Executive, NHS England regarding the Calea PN supply issue has received

Meeting with Dr A Fowler

19/08/2019

An opportuntiy to represent members

Minister for Health and Social Services, Wales

16/08/2019

PINNT receives a response to their letter

BAPEN commitment to PINNT

11/08/2019

We are delighted to share a statement from BAPEN (The British Association for Parenteral and Enteral Nutrition) on the final day of HAN week 2019

Our response to members re: Calea PN supply issue

10/08/2019

Reaching out to those who are affected by the Calea PN supply issue

Living with artificial nutrition booklet

09/08/2019

It's been printed - request your copy now!

See how parenteral nutrition is made

09/08/2019

We are delighted to offer a unique experience to existing PINNT memebrs, in partnership with Baxter

The Transition booklets project

07/08/2019

We are pleased to launch the first of a three-part series of leaflets for those going through the Transition phase from paediatric to adult care.‘Transition for young...

Living with an enteral tube

06/08/2019

People with enteral tubes and their carers' views of living with a tube and managing associated problems: A qualitative interview study

PN homecare supply issue - Open Letter

24/07/2019

Further to our letters to members regarding the on-going supply issue of parenteral nutrition (PN) from Calea UK, we are sharing a letter we sent yesterday.

Annual get together

17/07/2019

Saturday 10th August 2019 Crowne Plaza, Birmingham City Centre, Central Square, B1 1HH 11.30 am - 4.30 pm

PN homcare supply issues update

13/07/2019

This information is only regarding the supply of PN to those with Calea

PN homecare supply issue

11/07/2019

This information is only regarding the supply of PN to those with Calea

International Patient Association news

03/07/2019

It's official

Short bowel syndrome research

12/06/2019

Calling PINNT members - patients and carers (someone who supports you)

Candidates for nomination

10/06/2019

We are pleased to offer you a brief summary of the candidates for nominations for the next term of office as outlined in Online, Issue 2.  

Positively Me! fashion show

25/04/2019

Jessica is a vivacious young lady who knows the personal impact of having a naso gastric feeding tube during her younger years.  

Gary Taylor

20/04/2019

Fuelled by enteral nutrition as he takes part in the London Marathon on 21st April 2019

Remembering Professor John Lennard-Jones

04/04/2019

Professor John Lennard-Jones1927 - 2019

'Just Can't Wait!' toilet card

02/04/2019

Do you worry about needing to use a toilet while you are out and about?

Membership Renewal Period Ended

31/03/2019

In line with the announcements circulated since December last year, the opportunity to renew your membership for 2019 has ended.

Short-listed for a PEN Award

23/02/2019

"Huge CONGRATULATIONS on the fantastic work you are doing in terms of Patient Experience and well done on making it to the final stage of the PEN National Awards!"

British Intestinal Failure Alliance - BIFA

12/01/2019

BIFA has produced some excellent Guidelines and Recommendations...

Membership renewal 2019

11/01/2019

It's time to renew your PINNT membership...

Guidelines for newsletter contributions

02/01/2019

Check your supplies pre-Festive Season

05/12/2018

Do it today - it's your responsibility to ensure you have all you/your child need, when your deliveries are coming and if you need to change/add/amend any scheduled deliveries.

PINNT emails

29/11/2018

All PINNT official emails will be temporarily unavailable for a short period of time - see below:

World HAN day

15/10/2018

PINNT supports World Home Artificial Nutrition (HAN) Day 15th October 2018

Pump testing

12/10/2018

Would you like to take part in valuable testing for a parenteral nutrition (TPN/PN) ambulatory feeding pump? BD are looking to gather user feedback on the next version of the...

PINNT's Short CVC Survey

07/10/2018

We are asking for your support in relation to a short survey about ‘central venous catheters (CVC)’ insertions, positions and care. We are looking for an overview of...

Intestinal Failure Services Consultation

10/09/2018

60 day consultation period started on 24 August 2018

See how parenteral nutrition is made

13/08/2018

We are delighted to offer a unique experience to existing PINNT members in partnership with Baxter