I have been on TPN for what seems like a life-time! After spending a long time in hospital undergoing many tests I was diagnosed with Visceral Neuropathy & Myopathy and told I would need TPN.
Although I have accepted that this is my future, it did not come easy, after all I was working for the social services, I had a husband and a daughter; Lisa, I just didn’t know how to deal with the life change, until I was introduced to Carolyn Wheatley from PINNT. After spending the weekend talking to Carolyn, I finally began to accept that this was my future & with the support of PINNT I could lead a relatively normal life; whatever normal is!!!
I have been a PINNT member for 15 years now and in the last few years have helped run the Addenbrooks PINNT meetings. I thoroughly enjoy supporting & talking to others that have been through the similar situations.
In the last year I have joined the executive committee, where I am learning all of the time. It is lovely to be a part of something that is so close to my heart and I hope that I can help others as I have been helped myself.