PN resources: Myth Busters No 4

08/08/2021

During HAN Week 2021 we will be sharing Myth Busters as part of our project with Baxter.  

In their Shoes app

08/08/2021

If you have intestinal failure and are living on parenteral nutrition, have you ever said or thought "you have no idea what it's like?" Professor Simon Lal & Dr Katherine Twist talk to us about the potential to change this via an app. They are carrying out a study to see if an app can assist healthcare professionals with awareness of IF and HPN, living with both. We hope to provide further information as it becomes available #HPN#hanweek2021#IF#organfailure  

PN resources: Myth Busters No 3

07/08/2021

During HAN Week 2021 we will be sharing Myth Busters as part of our project with Baxter.

It's competition time

07/08/2021

#smile 

Learnings from PINNT

06/08/2021

Support & advocacy for people on home artificial nutrition   

PN resources: Myth Busters No 2

06/08/2021

During HAN Week 2021 we will sharing Myth Busters as part of our project with Baxter.  

PN resources: Myth Busters No 1

05/08/2021

During HAN Week 2021 we will be sharing Myth Busters as part of our project with Baxter.  

Baxter & PINNT partnership

04/08/2021

Exciting news...

Enteral Top Tips Guide

03/08/2021

During HAN Week 2021 we are pleased to update you on our Top Tips Guide for people using enteral nutrition  

Candidates for nomination

19/07/2021

Here are our candidates offering to volunteer for PINNT for a further 12 months, subject to the completion of the formal nomination process. Please complete your nominations by the 1st August 2021. If you would like to be a part of Team PINNT, please use the nomination form to put yourself forward. Even the smallest amount of time/support can make a huge difference to the work that PINNT can achieve. Don't be shy! After reading through the nominations, please complete the online nomination form on Survey Monkey using the link below: Complete the nomination survey

Challenge Gary

07/07/2021

Gary is nil by mouth and totally fuelled by enteral nutrition.  

Sarah supported HAN Week 2020

11/06/2021

The challenge was set by Ezekiel...  

Executive Committee #CaptainTom100

04/05/2021

100 Knock Knock jokes...

PINNT’s Virtual Nutrition Team (VNT)

19/04/2021

We’re recruiting...  

Advisory panel - enteral nutrition

07/04/2021

We are seeking volunteers to be part of a PINNT enteral nutrition (EN, tube feeding/ oral nutritional supplements) advisory panel.  

Advisory panel - parenteral nutrition

06/04/2021

We are seeking volunteers to be part of a PINNT advisory panel for people on parenteral nutrition  

Home parenteral nutrition survey

10/03/2021

Are you over 18 years old and currently receiving home parenteral nutrition (HPN)?  

Talking about HAN

11/02/2021

PINNT and NGPOD Global collaboration

Calling Enteral Tube Users

02/02/2021

Are you a home enteral tube user who would be willing to share your knowledge and experience?  

Anna's story...

21/01/2021

I am delighted to be launching PINNT’s new awareness campaign ‘Let’s talk about HAN.’ It is vital that we keep the conversation going about home artificial nutrition (HAN).  

NEW campaign

15/01/2021

Let's Talk about HAN...

Brexit - reciprocal healthcare arrangements

04/01/2021

Brexit deal reciprocal healthcare arrangements with the EU  

Calea statement: recent changes to deliveries

23/12/2020

Deliveries over Christmas and the New Year  

BAPEN & PINNT Statement - New Tier 4 guidance

22/12/2020

Guidance for Clinically Extremely Vulnerable (CEV) people in Tier 4  

Join our PPP Club

17/12/2020

PINNT's Prize Pot Draw starts again in 2021...  

Calling all enteral tube feeding members

16/12/2020

Would you like to take part in an interview for a podcast/video?Would you be happy to share your experience of tube feeding?It's a chance to give insight from your experience to share messages with healthcare professionals. If you are a patient, carer/partner or parent who would be keen to know more, we'd love to hear from you, email us on comms@pinnt.com as soon as possible.  

COVID-19 vaccine advice on priority groups

03/12/2020

Information received from the Specialised Healthcare Alliance, of which we are a member, which provides a summary of the vaccine advice on priority groups  

Finding solace in difficult times

30/11/2020

Seeing through the challenges and finding the nuggets of gold can be hard at this time of year but help is always at hand if you need it.  

BAPEN & PINNT Statement

23/11/2020

Join statement on recent advice for people on HPN previously advised to shield  

World HAN Day 2020

15/10/2020

Have your say - patient survey in Northern Ireland

11/09/2020

Patient survey now open for valuable feedback from those on enteral feeding in Northern Ireland

Guidelines for newsletter contributions

02/09/2020

We warmly encourage everyone to contribute – both those on HAN and their carers or family members.

Travel update

31/08/2020

We are pleased to share the latest advice from PINNT. We recommend you read this carefully and consider your options in consultation with your own nutrition team or healthcare professionals.  

Living with artificial nutrition booklet

11/08/2020

A must read! Order now!

PINNT COVID-19 survey headlines

09/08/2020

Our survey said...

BAPEN enteral survey

08/08/2020

Further to the statement made by The British Association for Parenteral and Enteral Nutrition (BAPEN) during Home Artificial Nutrition (HAN) week in 2019, we are delighted to provide an update.  

Top Tips leaflet

07/08/2020

Managing psychological well-being: Top tips for adults living with home parenteral nutrition (HPN)

Launching the 3rd booklet in the Transition Trilogy

06/08/2020

The series is now complete

PENG support HAN Week 2020

05/08/2020

#ThisIsMe stories for #HANWeek2020

Launch of HAN Week 2020

03/08/2020

Welcome to Home Artificial Nutrition (HAN) Awareness Week 2020

Virtual workshop

11/07/2020

PINNT is hosting a special virtual workshop  

PINNT and BAPEN statement on shielding for patients on Home Parenteral Nutrition

01/06/2020

NHS HPN update

28/05/2020

Q & A

13/05/2020

A quick-fire question and answer sheet for PINNT members on Home Artificial Nutrition (HAN)  

Giving set upgrade for Rythmic giving set

04/05/2020

We are pleased to share information about an upgrade to the giving set used by people who have the Mini Rythmic PN pump for their parenteral nutrition.  

Challenge Gary

24/04/2020

The 2.6 challenge on Sunday 26 April 2020  

Home enteral nutrition statement

18/04/2020

 This information was put together for you by healthcare professionals and PINNT  with contributions from the home enteral feeding companies Abbott, Fresenius Kabi and Nutricia 

Current outbreak of Coronavirus (COVID-19) and travelling

14/04/2020

For the latest official updates regarding travel, please use this link: Foreign & Commonwealth Office  

PINNT face to face meetings

07/04/2020

We are postponing all face to face meetings as of today due to COVID-19

Thanking all our heroes

02/04/2020

PINNT salutes key workers and the NHS during this difficult time  

BAPEN statement on coronavirus and home parenteral nutrition

02/04/2020

Please read this statement - PINNT is a core group of BAPEN, we elected to support this statement in line with the professional groups but not sign as it had implications in terms of medical advice which PINNT cannot provide.  

NHS statement

29/03/2020

Unable to help!

24/03/2020

Increase in calls and emails  

COVID-19 statement

24/03/2020

Information from PINNT  

'At Risk' poster

19/03/2020

Available to print  

Homecare statement

18/03/2020

A statement from the National Clinical Homecare Association

SMC decision on teduglutide (Revestive®)

11/02/2020

We are delighted to share the following news.

Error during mailing with updates on FAQs in relation to Calea PN supply issue

05/02/2020

Firstly we are pleased that there is an update to the FAQ’s that are supporting those affected by the Calea PN supply issue: https://improvement.nhs.uk/calea  

The second Transition booklet

13/01/2020

Transition for young people with intestinal failure

Calea PN supply update

05/01/2020

Letter and updated 'Frequently asked Questions'

BAPEN video

01/12/2019

Nutrition Matters, BAPEN Matters

Nutrition matters!

29/11/2019

BAPEN confernce - 26 & 27 November 2019  

United voices for good nutritional care

22/11/2019

Making a real difference to patients’ nutritional care - Cambridge plays host to the Optimal Nutritional Care for All Annual Conference November 2019  

Blended diets

14/11/2019

The use of Blended Diet with Enteral Feeding Tubes

Flu vaccine

19/10/2019

It's that time of year again

National conversation on rare diseases

16/10/2019

Baroness Nicola Blackwood, Minister for rare diseases at the Department of Health and Social Care invites people to join in the conversation about rare diseases

World HAN Day

15/10/2019

As a founder member of PACIFHAN we celebrate World HAN Day 

Invisible Disabilities Week

14/10/2019

13 - 19 October 2019

Resource for those affected by the FK Calea supply issue

20/09/2019

Information on the supply issue to people on home parenteral nutrition with FK Calea

Update!

12/09/2019

Latest update on the Calea PN supply issue

Calea patients on replacement bags

07/09/2019

Letter to patients with Calea on parenteral nutrition who may be receiving a different parenteral nutrition bag - latest information update

Have your say!

06/09/2019

Opportunity to take part is now closed - thanks to everyone who responded.

Reply to PINNT

28/08/2019

Sharing the response received following our letter to Simon Stevens, Chief Executive, NHS England regarding the Calea PN supply issue has received

Meeting with Dr A Fowler

19/08/2019

An opportuntiy to represent members

Minister for Health and Social Services, Wales

16/08/2019

PINNT receives a response to their letter

BAPEN commitment to PINNT

11/08/2019

We are delighted to share a statement from BAPEN (The British Association for Parenteral and Enteral Nutrition) on the final day of HAN week 2019

Our response to members re: Calea PN supply issue

10/08/2019

Reaching out to those who are affected by the Calea PN supply issue

See how parenteral nutrition is made

09/08/2019

We are delighted to offer a unique experience to existing PINNT memebrs, in partnership with Baxter

The Transition booklets project

07/08/2019

We are pleased to launch the first of a three-part series of leaflets for those going through the Transition phase from paediatric to adult care.‘Transition for young people with intestinal failure – The what, the why, the where and the how?’ PINNT welcomes the opportunity to partner on projects that sees the patients, parents, carers, and on this occasion healthcare professional, gaining a useful and informative resource.

Living with an enteral tube

06/08/2019

People with enteral tubes and their carers' views of living with a tube and managing associated problems: A qualitative interview study

PN homecare supply issue - Open Letter

24/07/2019

Further to our letters to members regarding the on-going supply issue of parenteral nutrition (PN) from Calea UK, we are sharing a letter we sent yesterday.

Annual get together

17/07/2019

Saturday 10th August 2019 Crowne Plaza, Birmingham City Centre, Central Square, B1 1HH 11.30 am - 4.30 pm

PN homcare supply issues update

13/07/2019

This information is only regarding the supply of PN to those with Calea

PN homecare supply issue

11/07/2019

This information is only regarding the supply of PN to those with Calea

International Patient Association news

03/07/2019

It's official

Short bowel syndrome research

12/06/2019

Calling PINNT members - patients and carers (someone who supports you)

Positively Me! fashion show

25/04/2019

Jessica is a vivacious young lady who knows the personal impact of having a naso gastric feeding tube during her younger years.  

Gary Taylor

20/04/2019

Fuelled by enteral nutrition as he takes part in the London Marathon on 21st April 2019

Remembering Professor John Lennard-Jones

04/04/2019

Professor John Lennard-Jones1927 - 2019

'Just Can't Wait!' toilet card

02/04/2019

Do you worry about needing to use a toilet while you are out and about?

Membership Renewal Period Ended

31/03/2019

In line with the announcements circulated since December last year, the opportunity to renew your membership for 2019 has ended.

Short-listed for a PEN Award

23/02/2019

"Huge CONGRATULATIONS on the fantastic work you are doing in terms of Patient Experience and well done on making it to the final stage of the PEN National Awards!"

British Intestinal Failure Alliance - BIFA

12/01/2019

BIFA has produced some excellent Guidelines and Recommendations...

Check your supplies pre-Festive Season

05/12/2018

Do it today - it's your responsibility to ensure you have all you/your child need, when your deliveries are coming and if you need to change/add/amend any scheduled deliveries.

Intestinal Failure Services Consultation

10/09/2018

60 day consultation period started on 24 August 2018

See how parenteral nutrition is made

13/08/2018

We are delighted to offer a unique experience to existing PINNT members in partnership with Baxter

Coming soon...

09/05/2018

Medical tag for enteral PINNT members

Latest LITRE report

15/03/2017

LITRE publish a user assessment on the ambulatory PN pumps

Disabled access holidays

14/07/2015

PINNT receive many requests in relation to holidays. A popular question is in respect of wheelchair friendly hotels and facilities. We do not endorse nor have first hand knowledge of this company but it may be of interest to you.

Recruiting

25/03/2015

Can you help ....

Calea homecare

19/06/2014

Homecare issues

Specialised HealthCare Alliance

18/06/2014

PINNT are a member of the specialised healthcare alliance and attended a meeting in the House of Commons on Tuesday 17th June where members met with their local MP s to discuss their treatment in more detail and increase their knowledge of the specialised services. Many of you may not be aware of how since the revamp of structure of the NHS, a number of specialised services have been created with the ambition of NHS England being to bring equity and excellence to the provision of these specialised care pathway and treatment.

Interested in Helping with Research

10/06/2014

University College London (UCL) are looking for a patient representative to get involved with a new project; ECLIPSE This project is Exploring the Current Landscape of Intravenous Infusion Practices and Errors (ECLIPSE)

Are you a carer for someone on enteral nutrition?

10/06/2014

University College London (UCL) are looking for patient to get involved with a new project; CARE-ERRS This project is intended to capture the experiences of carers of people who use feeding pumps in the home.

Can you help?

11/04/2014

Have you had Clostridium difficile associated diarrhoea? If so you may be able to help with a survey that is being designed by PharmaQuest.

Are you tube fed? Are you a carer?

12/11/2013

Deadline extended until Wednesday 20th November for registration of interest. A few places left .... We are currently working with Nutricia to help better understand the journey a patient or carer goes through when you yourself or a close one starts on tube feeding right through to living with it at home.

HPN homecare in England

21/10/2013

National tender for Home Parenteral Nutrition (HPN) Services in England (adults and children)

Hospital Inspection Teams

16/08/2013

Sir Mike Richards, new Chief Inspector of Hospitals, is asking for clinicians, NHS professionals and members of the public to join his hospital inspection teams.

PIP - Personal Independence Payment

08/04/2013

From 8 April 2013 the Government is introducing a new benefit called Personal Independence Payment (PIP) to replace Disability Living Allowance (DLA) for eligible working age people aged 16 to 64.

Hair Loss in Home Parenteral Nutrition

28/01/2013

Following queries to PINNT regarding hair loss in people who are receiving home parenteral nutrition we are pleased to offer the following feature which discusses the issue.

Closed

26/01/2013

Thanks everyone

Access Guide

21/01/2013

National Trust Access Guide 2013

First meeting of the newly formed South East London PINNT Group

17/08/2012

Wednesday 12th September 2012 at 11am; Sainsbury Wing of the National Gallery, London. find out more here.

PINNT say 'thank you'......

10/06/2012

A dream that came true ......

East Anglia Meeting STOP PRESS!

05/06/2012

The last meeting was a huge success! Full report will follow soon.Stop Press: Next meeting - Saturday 24th November 2012, 1.30 ~ 4.30 p.m Watch this space for full details.

Norwich Meeting STOP PRESS!

05/06/2012

The last meeting was a huge success! Full report will follow soon.Stop Press: Next meeting - Saturday 25th August 2012, 1.00 ~ 4.00 p.m, Bawburgh Village HallWatch this space for full details.

The Claire Rayner Patient's Choice Award

15/11/2011

Has a nurse* made a real difference to your health care? Say thank you by nominating them for an award. *you can nominate nurses, health visitors, midwives, registeed to practise in the UK and healthcare assistants

Date for your diary!

25/07/2011

Inaugural meeting in Norwich announced

Successful forum

25/07/2011

Have you joined in; it's never too late to start!

Aberdeen meeting

15/06/2011

Thursday 28th April 2011

East Anglia Meeting

17/04/2011

Saturday 16th April - more fun at Addenbrooke's Hospital ...

Membership Offer

16/02/2011

PINNT have been proactive in working with homecare companies to raise awareness of PINNT. <!-- Unsubscribe carolynwheatley dsl.pipex.com | Update your profile | Forward to a friend -->

Health and Social Care Bill

19/01/2011

The Health and Social Care Bill was published today. Included were the estimated costs and savings related to the changes that the Bill will implement. A second reading of the Bill is expected in the week ending 4th February.

National Trust - Access Guide 2011

14/12/2010

The new National Trust Access Guide for 2011 is now available.

Weather halts meeting!

19/11/2010

Sadly meeting is cancelled due to adverse weather conditions and forecast. Watch this space for further information about next meeting Saturday 4th December 2010 from 3 p.m.

Weather halts meeting!

17/11/2010

Sadly meeting is cancelled due to adverse weather conditions and forecast. Watch this space for further information about next meeting Christmas meeting ...

Pilot Scheme for non emergency medical care

28/10/2010

Another new phone service within the NHS is being piloted in the North East for those needing non-emergency medical care.

Government Spending Review

21/10/2010

The Government announced their Spending Review on Wednesday 20th October 2010. This focuses on their attempt to reduce the economic deficit of the Country. It is possible that some people will now be very concerned about their benefits , employment and possibly housing.

LITRE update

14/10/2010

A multi-professional committee led by patients. Looking into the Requirements for Equipment, (LITRE) originally functioned as a working under the umbrella of Patients on Intravenous and Naso Gastric Nutrition Therapy (PINNT). LITRE then became a standing committee within the British Association for Parenteral and Enteral Nutrition (BAPEN). LITRE is now convened within PINNT.

The Cinema Exhibitors’ Association Card

20/08/2008

You can apply for a national card that will entitle the holder (that s you) to one free ticket for a person accompanying you to the cinema.

Department for Transport – Airport Security

24/07/2008

The following is a guide to the security requirements for all passengers departing from UK airports and also provides some advice that will help passengers pass through the security search point as quickly as possible.

Hello Members

24/06/2008

Hello to everyone logging onto our members area. Rather disappointed not to see new content since the area was launched so I thought I would try and kick start some responses.

Micrel Medical Devices

24/06/2008

Information concerning the use of the Mini Rythmic PN while travelling on commercial airlines.