News

National conversation on rare diseases locked
16/10/2019

National conversation on rare diseases

Baroness Nicola Blackwood, Minister for rare diseases at the Department of Health and Social Care...
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World HAN Day locked
15/10/2019

World HAN Day

As a founder member of PACIFHAN we celebrate World HAN Day 
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Invisible Disabilities Week locked
14/10/2019

Invisible Disabilities Week

13 - 19 October 2019
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Resource for those affected by the FK Calea supply issue locked
20/09/2019

Resource for those affected by the FK Calea supply issue

Information on the supply issue to people on home parenteral nutrition with FK Calea
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Update! locked
12/09/2019

Update!

Latest update on the Calea PN supply issue
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Calea patients on replacement bags locked
07/09/2019

Calea patients on replacement bags

Letter to patients with Calea on parenteral nutrition who may be receiving a different parenteral...
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Have your say! locked
06/09/2019

Have your say!

Opportunity to take part is now closed - thanks to everyone who responded.
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Reply to PINNT locked
28/08/2019

Reply to PINNT

Sharing the response received following our letter to Simon Stevens, Chief Executive, NHS England...
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Meeting with Dr A Fowler locked
19/08/2019

Meeting with Dr A Fowler

An opportuntiy to represent members
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Minister for Health and Social Services, Wales locked
16/08/2019

Minister for Health and Social Services, Wales

PINNT receives a response to their letter
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BAPEN commitment to PINNT locked
11/08/2019

BAPEN commitment to PINNT

We are delighted to share a statement from BAPEN (The British Association for Parenteral and Ente...
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Our response to members re: Calea PN supply issue locked
10/08/2019

Our response to members re: Calea PN supply issue

Reaching out to those who are affected by the Calea PN supply issue
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