All about PINNT

PINNT offers a range of support and resources for members: A support & advocacy group for people on Home Artificial Nutrition (HAN).
 

  • Patient support & advocacy: Our aim is to offer support, empathy and contact to patients who require artificial nutrition at home.
  • Education: Showcasing life on HAN from the patients/carers/family perspective. Working to use this information to enhance services, thoughts and perceptions.
  • Information resource: Ability to work with professional bodies, manufacturers, policy makers, service providers to give insight to enhance and develop services, products and information

An inclusive group for people on HAN, family, friends and healthcare professionals - including our industry friends.

In addition to practical resources, we offer regional and local meetings via established and new groups, where the importance of face-to-face peer support is evidence.

 Below is a list of some resources members can access.

Travel and Holiday Guidelines:

Travel and Holiday Guidelines:

  • Overview of the process for travel and holidays
  • Parenteral and enteral feeding
  • Holidays in the UK and abroad
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Talking Points 1:

Talking Points 1:

  • Aimed at starting a discussion with your healthcare team and the homecare company about a potential trip or holiday
  • Practical aspects you should consider
  • General consideration points
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Talking Points 2:

Talking Points 2:

  • Purchase travel insurance ‘as soon as you book’ a trip or holiday you  wish cover for!
  • Reminder about the new GHIC card
  • Consideration points to aid purchasing the right insurance policy for you and those travelling with you
 
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Talking Points, part 2: insurance companies:

Talking Points, part 2: insurance companies:

  • If you need travel insurance and do not know which company to try, PINNT is happy to share a list of potential companies
  • PINNT acknowledges that it is not a comprehensive list of companies who will cover conditions which necessitate artificial feeding
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Talking Points 4: Transportation and safe storage of your artificial nutrition

Talking Points 4: Transportation and safe storage of your artificial nutrition

  • General consideration points
  • Letters and supporting documentations
  • Advice on enteral and parenteral feeds
  • Current EU Regulations
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Virtual Nutrition Team Guidance (VNT), Your questions answers:

Virtual Nutrition Team Guidance (VNT), Your questions answers:

Swimming and other recreational water-based activities with an intravenous catheter or an enteral feeding tube:
 
  • Produced by our multi-disciplinary team of healthcare professionals. PINNT trustees and committee members are not able to recommend nor encourage swimming due to individual clinical needs of members
  • All water-based activities carry the potential for infection, where there is a clinical impact a clinical conversation is required
  • Overview of what products are available to support people
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Living with Artificial Nutrition booklet:

Living with Artificial Nutrition booklet:

  • Addresses important issues such as sex and relationships, low self-esteem, and the emotional impact of living with artificial nutrition
  • Highly recommended read for anyone on artificial nutrition and for those who care for someone who has HAN
  • Everyone living with artificial nutrition will have their own experiences but it's amazing how many issues and experiences are common amongst users
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Living with an enteral feeding tube:

Living with an enteral feeding tube:

  • An assortment of tips from fellow tube feeders
  • No clinical information shared
  • Practical ways to cope and manage ‘living’ with an enteral tube
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Transition trilogy:

Transition trilogy:

Three booklets in the PINNT Transition for young people with intestinal failure series:
 
  1. The what, the why, the where and the how
  2. Information for healthcare professionals
  3. Transition guide for parents and carers supporting young people on home parenteral nutrition
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PINNT SAFETY poster:

PINNT SAFETY poster:

  • Designed for all HPN/TPN adults who go into hospital, to address key questions about your treatment and care plans
  • Good to start a conversation when not in or with  usual hospital or healthcare professionals
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PINNT Medical Tag:

PINNT Medical Tag:

  • Designed to aid people when out and about to #verify genuine medical equipment in a rucksack
  • #verify the product they can see and gain product specifications
  • A tag and card so you can decide what you wish to use and how
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PINNT Restaurant Card:

PINNT Restaurant Card:

  • Designed to aid people on HAN who wish to socialise in diners, restaurants etc.
  • Aid a conversation as to why eating and drinking may be limited or not possible
  • Support individual’s needs to have their medical nutrition if required while socialising
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PINNT newsletter – Online:

PINNT newsletter – Online:

  • News, updates and stories sent via email to members on a quarterly basis
  • A place to read PINNT keeping members up to date with charity activities
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Quality Standards for Nutrition Support in Adults - Promises made to you

Quality Standards for Nutrition Support in Adults - Promises made to you

  • Improving Patient Care in the NHS
  • Quality Standards
  • Self Management of Artificial Nutrition Support
  • Reviews
  • Your checklist
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Quality Standards for Nutritional Support in Adults – Promises made to your patients

Quality Standards for Nutritional Support in Adults – Promises made to your patients

  • Improving Patient Care in the NHS
  • Quality Standards
  • Self Management of Artificial Nutrition Support
  • Reviews
  • Your checklist
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