PINNT are a member of the specialised healthcare alliance and attended a meeting in the House of Commons on Tuesday 17th June where members met with their local MP s to discuss their treatment in more detail and increase their knowledge of the specialised services.
Many of you may not be aware of how since the revamp of structure of the NHS, a number of specialised services have been created with the ambition of NHS England being to bring equity and excellence to the provision of these specialised care pathway and treatment.
University College London (UCL) are looking for a patient representative to get involved with a new project; ECLIPSE
This project is Exploring the Current Landscape of Intravenous Infusion Practices and Errors (ECLIPSE)
University College London (UCL) are looking for patient to get involved with a new project; CARE-ERRS
This project is intended to capture the experiences of carers of people who use feeding pumps in the home.
Have you had Clostridium difficile associated diarrhoea? If so you may be able to help with a survey that is being designed by PharmaQuest.
Deadline extended until Wednesday 20th November for registration of interest.
A few places left ....
We are currently working with Nutricia to help better understand the journey a patient or carer goes through when you yourself or a close one starts on tube feeding right through to living with it at home.
National tender for Home Parenteral Nutrition (HPN) Services in England (adults and children)
Sir Mike Richards, new Chief Inspector of Hospitals, is asking for clinicians, NHS professionals and members of the public to join his hospital inspection teams.
From 8 April 2013 the Government is introducing a new benefit called Personal Independence Payment (PIP) to replace Disability Living Allowance (DLA) for eligible working age people aged 16 to 64.
Following queries to PINNT regarding hair loss in people who are receiving home parenteral nutrition we are pleased to offer the following feature which discusses the issue.