Hello Members
24/06/2008
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Hello to everyone logging onto our members area. Rather disappointed not to see new content since the area was launched so I thought I would try and kick start some responses.
Hello to everyone logging onto our members area. Rather disappointed not to see new content since the area was launched so I thought I would try and kick start some responses.
Sadly I am going to talk about an old issue portable pumps. I must admit I have had mixed emotions when reading the snippets about the introduction and problems associated with the new portable parenteral feeding pumps.
I can understand why PINNT may not be printing via Online any further major features, not fair to continually worry members but I do want to know what s happening.
Admittedly I ve encountered a few hiccups and I have now mastered my new pump but if I m truly honest I really don t feel completely happy with it. Gone is my peace of mind; I m subconsciously waiting for something to go wrong, I no longer have a peaceful nights sleep; I listen for an alarm, I worry if I don t hear an alarm, is it leaking again and I don t realise it. Without wanting to appear ungrateful for all the efforts that has been put into developing my new pump but it just doesn t give me peace of mind.
Being aware of what the associated risks of HPN are I find it rather disconcerting that given the period of time the new pumps have been in use surely we should be able to trust our equipment with more confidence.
Can we have users letters on the members area please if we are not going to publish them via Online? We need to continue the debate, find out what problems/hiccups are still occurring plus watch out for new ones. I know some people have had negative feedback when reporting hiccups You re the only one or it s not been reported by anyone else surely PINNT must continue to know what s happening and keep the pressure on to get answers.
Personally I tire of trying to get the message across that no matter how much healthcare professionals, manufacturers and others do care I care even more, it s my treatment, my responsibility at home and I just don t feel 100% confident with the equipment I am using.
Come on write into PINNT via pinnt dsl.pipex.comThis e-mail address is being protected from spambots. You need JavaScript enabled to view it and ask for your comments to be posted in the members area or write send your contributions to PINNT, PO Box 3126, Christchurch, Dorset BH23 2XS and mark the envelope Members Area .
A content but not truly happy feeder.
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