The series is now complete
The pathway of Transition for young people with Intestinal Failure requires an integrated approach that forms a triangle of communication and working together. The success of Transition is fully dependent upon the triangle working together. It is therefore important to ensure that everyone is supported in the process.
The resource for health care professionals is a brief overview which highlights the main areas for consideration that will aid an individualised transition pathway for every young person. Everyone caring for children and young people with Intestinal Failure needs to take a responsibility for Transition - the pathway may start in paediatrics but it does not finish until the young person has transitioned into adult care - this may take months or years. Therefore, both paediatric and adult health care professionals need to participate and work together to create a successful transition process, which in turn impacts of health outcomes such as compliance and engagement.
We released the first Transition booklet for young people with Intestinal Failure in 2019 - since then the majority of paediatric centres have started using them as part of their transition pathway. The feedback has been amazing from both young people and families as well as the health care professionals using them for preparation in the process. All the resources are available from PINNT - please be sure to request copies to support children and young people, parent/carers and healthcare professionals in the transition process.
A very big ‘thank you’ to Dr Arun Urs who supported the project through PINNT, Angela Thompson, Catriona McDonald and Lizzie Hutchison for contributing and review and The National Paediatric Parenteral Nutrition Nurses for the support and moving the pathway of Transition forward with the PINNT resources.
You can download a copy of the booklet here
Copies can be requested from PINNT via firstname.lastname@example.org
please note these will not be posted until after Monday 24th August 2020.
Lead Clinical Nurse Specialist for Children with
The Royal London Hospital (Barts Health)