Intestinal Failure Services Consultation

60 day consultation period started on 24 August 2018
We are a registered stakeholder for the Specialised Colorectal Clinical Reference Group (CRG) at NHS England.

PINNT, together with NHS England set up a reading group to comment on the process during its development.

Following the consultation last year on the new service specification for specialised severe intestinal failure services ( ), on 24 August a 60 day public consultation to explain how NHS England plan to implement the new clinical model, and what this could mean for patients was launched.  In particular they have set out how many Integrated IF Centres (surgical and medical) and Home PN (parenteral nutrition) Centres (medical only) they believe are required in each area of the country in order to deliver a high quality service, within reasonable travel distances for patients. NHS England will be investing additional resources to support the new service model.
More information about the proposals, including technical supporting information is available at you can complete an online survey to share your feedback.

The closing date for the consultation is Monday 29 October 2018.
They will be running a number of webinar sessions, aimed at patients and carers, and clinicians and service managers – which you can register for below. These will be an opportunity to talk through the proposals and ask any questions about what this could mean for you.

To join a webinar you need access to a computer and a phone line – it’s free to join, and step by step instructions will be sent to all participants before each session:
For patient & carers
Wednesday 12 September, 1 – 2pm Register
Tuesday 25 September, 6 - 7pm Register
For clinicians & service managers
Tuesday 25 September, 1 – 2pm Register
Thursday 27 September, 4 – 5pm Register
We will also be offering further opportunity for members to convey your views in addition to the opportunties given above. It will include Q&A sessions on social media, so please look out for more information over the next few weeks. If anyone has other ideas about the best way to involve people through this consultation process, please do contact them on

In their engagement with patients, they have already heard some of  the questions that people have about the impact our proposals may have, and they have initially addressed them. Click here to read some FAQs: Severe-Intestinal-Failure-Consultation-FAQs.pdf
Please take time to read this and comment if you wish to, all too often patients feel they are not heard - now is your opportunity to contribute to future services.



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