HAN Week 2019

HAN Week 2019

Day 7 - Paul Phillips's Story

Paul - Still active and alive!

Paul - still active and alive Read Now

Paul - My ironic life!

Paul - My ironic life Read Now
Day 6 - I feel so lucky - Tracy’s Story

Day 6 - I feel so lucky - Tracy’s Story

I have a truly remarkable husband, David, one daughter, Lisa, a son-in-law, Ian, and the loves of my life, my three grandchildren, Lewis 17, Ryan 16, and my little princess Olivia, 12. I also have my little friend pops - a cocker spaniel. Everyone has been there to love and support me. How did one girl get to be so lucky!

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Day 5 - A very full life… but hold the long-haul travel! - Molly’s story

Day 5 - A very full life… but hold the long-haul travel! - Molly’s story

I’m nearly seventy-six years of age, but I’m slim, active and take part in many enjoyable activities. I’ve always tried to eat healthily but from the age of nineteen I had Crohn’s disease and eating was a problem. Now I’m on PN every day (an operation to remove most of my large and small bowels took place in 2010), however, life has never been so good.

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Day 4 - Lots of fun and lots of storage room - Ezekiel’s story, by his mum

Day 4 - Lots of fun and lots of storage room - Ezekiel’s story, by his mum

When Ezekiel first stared feeding as a baby we had no idea how complex his feeding journey would be. Even though he has had multiple admissions and surgeries in the past five years he doesn’t let anything stop him from having fun and being a little boy! Ezekiel is now six-years old. He had a percutaneous endoscopic gastrotomy (PEG) fitted in 2014 and jejunostomy (JEJ) feeding tube in 2017 due to multiple allergy and gut dysmotility.

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Day 3 - One day at a time - Doe’s story

Day 3 - One day at a time - Doe’s story

I cope with my life by taking each day as it comes. I have an nasojejunal (NJ) tube for mobility issues of the oesophagus and stomach. I also suffer with dysmotility. I am due to get a percutaneous endoscopic gastro-jejunostomy (PEGJ) following further tests. I suffered placental abruption during two of my pregnancies resulting in a full abdominal hysterectomy leaving scar tissue and nerve damage. Additionally, I have also suffered with fibromyalgia, migraines, asthmas and intermittent depression. To cope with all this, I follow my nan's motto - one day at a time!

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Day 2 - Tragedy and joy - John’s story

Day 2 - Tragedy and joy - John’s story

I am 73-years-young and am fed via parenteral nutrition (PN) five nights a week. I am married to Brenda and father to Richard (who tragically passed away seven years ago) and Karen. I also have four grandchildren. My home artificial nutrition (HAN) story began when I went away on a Christmas break in 2015, contracted the flu, came home and felt very unwell. I was referred from the local hospital to Southampton where I was diagnosed with intestinal failure with no known cause, although it was believed to be the result of a viral infection.

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Day 1 - Reach out to others - Angeline's story

Day 1 - Reach out to others - Angeline's story

I live with my partner, Remco, and our cat, Polly and I've been fed by home artificial nutrition (HAN) for twenty years - the first nineteen of them on enteral feeding. For the last year I have been fed via parenteral nutrition (PN). I've had severe, aggressive Crohn's disease since I was a kid, so I lost a lot of my small intestine to surgery, resulting in Short Bowel Syndrome and Intestinal Failure.

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Home Artificial Nutrition Awareness Week 2018
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