Intestinal failure services

01/02/2017

Can you put your knoweldge of intestinal failure in the NHS to good use?

Some of you may recall features in Online that provided updates on the HIFNET process. It was also alluded to when we did our survey in 2016. We have been involved since this concept began.  As you know the process was stopped in June last year. We were assured a new process would commence in 2017.

NHS England is now undertaking a service review into specialised services for adults who have experienced intestinal failure (IF). The review will be chaired by a lead clinician and will draw membership from clinical experts, royal colleges, patients / patient organisations and commissioners.  There is an opportunity for you to register an interest in being an additional patient representative. The role would be better shared by two patients who have personal knowledge and experience of the different pathways within IF services within the NHS.
The working group is likely to run for about twelve months and will help confirm the clinical model and quality standards for the service nationally, prior to selecting IF centres. It is envisaged the group would meet up to five times (most likely via teleconference or WebEx) with some additional email discussion in the interim.

The role of the patient representative would be to bring insight into patients’ experiences and needs from a wider patient perspective. It is also hoped that the patient representatives would have contacts to help identify relevant stakeholders with whom the model can be tested and help review feedback from consultation.

If you are interested to find out more, please email sbrown@pinnt.com . Please put ‘IF Service Review’ in the email subject box. We will collate a list of interested people which will be forwarded to NHS England. An initial call will take place to outline the application process and explain the role in more detail.

By expressing an interest via email to PINNT you consent to us passing on your name and email address to NHS England. 

Please respond by 14th February 2017
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