HANs week features

DAY 7 BAPEN

BAPEN is a Charitable Association that raises awareness of malnutrition and works to advance the nutritional care of patients and those at risk from malnutrition in the wider community.

BAPEN brings together the strengths of its Core Groups to raise awareness and understanding of malnutrition in all settings and provides education, advice and resources to advance the nutritional care of patients and those at risk from malnutrition in the wider community.

www.bapen.org.uk

"We pledge to run a 'Commitment to Act' pledge campaign to engage with our partners and all parts of the health and social care system to deliver improvements in nutritional care for patients. We will track the pledges made and publish our progress."

Patient Stories

Sam

Nick

 

DAY 6 BSPGHAN

BSPGHAN is a professional organisation with the specific roles of promoting research, training and standards of clinical practice for health professionals and scientists in paediatric gastroenterology, hepatology and nutrition.

BSPGHAN provides professional leadership and promotes standards of care for children with nutritional, gastrointestinal and hepatological disorders.  Its membership includes consultants and specialist trainees in paediatric gastroenterology, hepatology and nutrition as well as specialist dietitians, nurses and nutrition pharmacists. The society supports research, training and education for members and the development of standards of care for children with nutritional disorders; it also gives advice and support to implement child-centred strategies to deliver nutrition assessment and nutrition support through the Nutrition & Intestinal Failure Working Group.

www.bspghan.org.uk

"BSPGHAN pledge is to have a patient representative for PINNT in all the paediatric home PN specialist medical centres."

Patient Stories

Freya

Peter

 

DAY 5 BPNG

"Feeding Information To Pharmacy" – bringing together pharmacists, pharmacy technicians and scientists from the Health Service, academia and industry sector who have parenteral and/or enteral nutrition as a specialist area or as a key part of their role.

www.bpng.co.uk

"The BPNG would like to pledge their support to PINNT in reviewing two important projects over the coming year. The first project will revise previous guidance published, looking at drug administration via enteral feeding tubes. This will provide an up to date reference source for patients and professionals alike to ensure that patients continue to receive the most appropriate medication, ensuring maximum benefit for the administration route available. The second collaboration will ensure that all types of patient will have access to a patient information leaflet about their artificial nutrition support, in particular PN."

Patient Stories

Thelma

Ryan

 

DAY 4 NNNG

The objective of the NNNG is to promote education in nutrition and related subjects for members of the nursing profession, for the public benefit, and especially for the benefit of patients in the hospital and community.

www.nnng.org.uk

"We pledge to provide a clear information sheet for patients on HPN being admitted to hospital to inform hospital staff of the care they require."

Patient Stories

Emma

Georgina

 

DAY 3 PENG

The Parenteral and Enteral Nutrition PENG was established in 1983 as a specialist group of the British Dietetic Association (BDA). It is a founder group of BAPEN. Over the years PENG has gained national and international reputation as a recognised authority on both practical and academic aspects of nutritional support. Today, PENG strives to support its network of Dietitians to deliver excellence in nutritional care through appropriate oral, enteral and parenteral nutrition.

www.peng.org.uk

"PENG pledge to work with PINNT and other professional bodies to develop a range of resources to guide patients and carers on how to look for, treat or prevent malnutrition and understand the methods of nutrition support available and such resources we will be developing will include sign-posting guides to help people access good nutritional care."

DAY 2 PINNT

Supporting patients at home who receive parenteral or enteral nutrition. They offer advice on the practical aspects of day to day living, coping with the treatment at home along with a wide variety of other aspects that people take for granted. PINNT also educate healthcare professionals about life on line from the patients’ perspective and work with manufacturers and service providers to enhance products and services that the patients receives.

pinnt.com

"PINNT pledge to update our ‘Restaurant Card’ and make it available free of charge to all full members of PINNT who wish to receive one."

Stop Press – second pledge from PINNT

"We pledge to set up a Virtual Nutrition Team (VNT) to act as a resource to seek professional support and guidance which will benefit our membership. The VNT will contribute to a number of PINNT activities. We are delighted to announce that this will be chaired by Dr Barry Jones."

Patient Stories

Henry

Sarah

 

DAY 1 BAPEN Medical

BAPEN Medical is a core group within the British Association for Parenteral and Enteral Nutrition (BAPEN) which is primarily aimed at doctors with an interest in clinical nutrition. Traditionally, we have mainly been a core group of gastroenterologists, GI surgeons and chemical pathologists but we are looking to broaden our membership, in particular, strengthening our links with critical care and other specialties. We actively encourage all clinical staff to join our meetings.

www.bapen.org.uk/about-bapen/bapen-core-groups/bapen-medical

'No decision about me without me' - we pledge to work with BAPEN medical members in the clinical networks to meet with our patients and ask them which outcomes are most important to them, and to make small but important changes to open the conversation to improve the nutritional care we provide for patients. We commit to listening to our patients to address 'what matters most' from their perspective, to actively engage patients in making decisions about their care.

Changes may be small such as providing one point of contact / contact telephone number (for use when patients are worried) or asking patients 'what matters to you' or 'what's worrying you' at the beginning of a consultation. Our main aim is to make sure patients are treated as individuals rather than 'an intervention'.

Patient Stories

Jackie

Debbie

Dawn

 

Supporters

 

Individual company/group pledges to PINNT:

Abbott Nutrition

www.abbottnutrition.co.uk

 

"Abbott Nutrition is delighted to support PINNT’s second Home Artificial Nutrition week. Support groups like PINNT provide much needed assistance, reassurance and practical guidance to patients receiving artificial nutrition. It’s key that we don’t forget that, alongside nutritional support, ultimately we're all here to give people a helping hand towards a better quality of life."

Appetite for Life

The Association for patients on parenteral and enteral nutrition was formed in Poland to improve quality of life of people who needs nutritional support.

www.apetytnazycie.org

 

"We pledge to continue our close cooperation with PINNT as we believe it will help us to achieve higher standard of activity to serve our members better and provide them with updated and valuable knowledge. Exchanging information, sharing experience and establishing joint projects will benefit in raising awareness about nutritional therapy at international level. We would like to also underline our strong commitment to HANs Awareness week campaign as we consider it as vital initiative."

Baxter at Home

www.baxterhealthcare.co.uk

 

"Baxter at Home pledge to PINNT that they will ensure patients and carers receive a patient booklet that provides them with full details on the service they will receive, along with other useful information, including details about PINNT."

B Braun

www.bbraun.co.uk

 

"TransCare support PINNT's Awareness week and pledge to update their patient literature. The new patient information folder will be easier to store, clean and navigate through and we will ensure that it contains all relevant the information for the patient to understand how our homecare service will work along with other useful information."

Birmingham Children’s Hospital Nutrition Team

 

"We as a team would like to pledge a home visiting programme for HPN patients.. We also pledge to continue our HPN parent/carer coffee mornings. Our main aims were to engage the parents/carers of children on HPN in both the hospital and community and to find out how we could support them."

Bupa Home Healthcare

www.bupa.co.uk

 

"At Bupa Home Healthcare we will be reviewing our patient literature to ensure that everyone has the information they need throughout their treatment with Bupa. Our pledge to PINNT is that our welcome literature will always be a valuable resource for our patients and their carers. Helping them to understand their homecare service and who they can go to should they have any questions."

BSNA

www.bsna.co.uk

 

"We pledge to continue working with the NHS to increase understanding of artificial nutrition in the community, including the development of resources for commissioners and healthcare professionals, and through signposting patients and their carers/families to support groups such as PINNT."

Calea

www.calea.co.uk

 

"During 2013 and 2014, we organised a series of patient days. These provided an opportunity for patients to share with us and among themselves, their experiences of the Calea homecare service and for us to gain new ideas on how we can develop the service further. As a company, Calea pledge to continue with the patient days, listening to patients in order to ensure that the service we provide both now and in the future remains at the very highest standard."

CME Medical

www.cmemedical.co.uk

 

"CME Medical pledge to create more acceptable, accessible and user friendly information for children on living with TPN."

CN Magazines

www.nutrition2me.com

 

"CN Magazines pledge to continue to raise awareness of PINNT amongst its vast nutrition health professional readership about the work PINNT does to improve patients lives on home artificial nutrition via CN Magazine, CN e-news and www.nutrition2me.com."

Hospira

www.hospira.com

 

"Hospira pledge to continue their commitment to customers and patients by serving their needs with integrity, trust and innovation.

To this end Hospira pledge to further the delivery of the Sapphire ambulatory PN pump to the market to help widen the choice of pumps available for patients and clinicians."

Inspiration Healthcare & Micrel Medical UK

 

"Inspiration Healthcare & Micrel Medical UK pledge to retain their ethos 'Patient First' in line with the NHS 'Your Health, Your Choice'. We commit to our patient focused charter."

Their pledge can be read via the following link: http://www.inspiration-healthcare.com/__Assets/Inspiration%20Pledge%202014%20FINAL.pdf?languageID=1

Nutricia

www.nutricia.co.uk

 

"Nutricia are proud to support PINNT's Home Artificial Nutrition week 2014 . We pledge to continue to actively work with other organisations to together promote good nutritional care - to ensure that people get access to the right nutritional care at the right time (in addition to this the right information at the right time too); through Nutricia Homeward and the Nutricia Nurses we support those individuals who are being enterally tube fed in the community and encourage peer to peer support through supporting local PINNT groups to meet and support each other."

The Oley Foundation

www.oley.org

 

"We pledge to continue our partnership and to co-work to fulfil our objectives to support patients and to educate those who need to understand life on line."

PNDU

Our mission at PNDU is to support, research and inform consumers, carers and providers of parenteral nutrition for intestinal failure.

www.parenteralnutritiondownunder.com

 

"PNDU pledge to PINNT to continue our partnership and to co work to fulfil our objectives to support patients and to educate those who need to understand life on line."

Vygon

www.disinfectingcap.co.uk

 

"Vygon pledge to support our HANs week 2014. A patient focused pledge will be added soon."

Život bez střeva

Život bez střeva is the Czech association for patients suffering from short bowel syndrome.

www.zivotbezstreva.cz

 

"We welcome the opportunity to support PINNT's Home Artificial Nutrition Week. We pledge to work with PINNT and other organisations in order to raise awareness about intestinal failure and artificial nutrition therapies."


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