Delighted to have found PINNT

07/08/2021

Hello, I am Joanne and I currently live in Hong Kong. I am a carer for my husband Ning who has been on parenteral nutrition (PN) for the past six years. 



Hello, I am Joanne and I currently live in Hong Kong. I am a carer for my husband Ning who has been on parenteral nutrition (PN) for the past six years.
 
Travelling around with PN is not easy but imagine relocating from one country to another – and that’s exactly what we are doing – we are moving from Hong Kong to Scotland.
 
You can imagine the number of problems we have foreseen. We knew there would be a lot of necessary paperwork but the added pressure of sorting out Ning’s PN has really worried me. Not knowing if PN would be available in Scotland, how to go about it, would it be funded or would we have to pay for it? Let alone knowing how to find the right contact to help us.
 
I put a message on a Facebook group asking if anyone knew how to go about this and I received a message from a lady who said she knew a charity that could help. I needed to know that my husband’s lifesaving PN would be available. I found out about PINNT and straight away I was able to ask many questions about the feeds, pumps and ancillaries. Obviously, it is different to the system we have, and I was keen to ask many questions. Within a few days I received a message back to say PINNT would be able to put me in touch with the right people who could guide us through the process. This will help to ensure that when we arrive in Scotland a plan will be in place to support Ning and his PN needs.
 
You can imagine the relief! Just one post on Facebook and I connected directly to people who could help me. Within a few weeks I was communicating with the relevant people in Scotland who have compiled a plan to support us when we arrive. Ning’s current medical team will be talking to the team in Scotland who will take over his care.
 
I am so thankful that PINNT exists, and I want to thank Carolyn for sending that message, it was truly life-changing for us. We will embark on our journey soon and I hope that in the future when it is safe to meet people, we will be able to meet the PINNT family and find out more about PN patients in Scotland and the wider PINNT family.
 
We are hoping to gain support from other people on PN and learn all we can; we know the importance of having the right support.
 
Until we can meet up face-to-face, best wishes from Hong Kong. I am happy to share my story with PINNT during awareness week.
 

Joanne



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