The Transition booklets project

07/08/2019

We are pleased to launch the first of a three-part series of leaflets for those going through the Transition phase from paediatric to adult care.

‘Transition for young people with intestinal failure – The what, the why, the where and the how?’

PINNT welcomes the opportunity to partner on projects that sees the patients, parents, carers, and on this occasion healthcare professional, gaining a useful and informative resource.

I am a Clinical Nurse Specialist (CNS) for children with Intestinal Failure. My work involves co-ordinating training and the discharge process for children and families going home with parenteral nutrition. The safe and effective care for children requiring HPN requires excellent communication and working relationships with community professionals such as those in continuing care and education. As the child and families care pathway continues my role develops into supporting transition into adult services and ensuring that all young adults receiving HPN have access to resources to reach their full potential.

Angela tells us about the Transition Project and explains why she feels three leaflets are needed. “Due to medical and surgical advances over recent years we have seen increased numbers of young people requiring HPN moving in adult care services. The Transition Project with PINNT provides support and guidance for the triangle of partners involved in the pathway to Transition. We have incorporated the guidance from Books, Smith etc... 2017 to help bring Transition alive for young people and families.”

I hope that hospitals that care for children and young people as well as adults will incorporate the Transition documents and tools into pathways and practices to help young people achieve a meaningful Transition as well as the crucial skills of independence.

Angela Cole – Nurse Specialist

We will be sending introductory packs to all centres treating young adults requiring HPN.
One free copy of each Transition booklet can be requested by current PINNT members.
Non-PINNT members and health professionals can also request copies. PINNT would very much appreciate a donation towards the costs of postage and packaging if you fall into this category.
For any addresses outside of the UK requiring a copy - a minimum donation of £5.00 is politely requested. All donations can be made via this link Donate via Paypal

PINNT members will need to provide the following: