New NICE publication
PINNT responds to the publication of the
NICE Quality Standard for Nutrition Support in Adults
PINNT welcomes the publication of the new NICE Quality Standard for Nutrition Support in Adults, its specific focus on patients receiving nutrition support therapies, and its recognition that delivering good nutritional care has a positive impact across a wide range of health conditions, and not only for gastrointestinal disorders.
Richard Shawyer, Vice-Chair and spokesperson for PINNT who has been receiving artificial nutrition himself for more than 5 years, says: ”From the patients’ perspective, we hope that the new NICE Quality Standard for Nutrition Support in Adults will provide an added impetus to improving the quality of life experienced by all on artificial nutrition. For us, that is the most important focus as we do already expect our therapies and our care to be safe!”
For PINNT’s members Standards 4 and 5 are of most interest as they state that patients themselves and their carers or families must be trained appropriately in the use and handling of their ‘at home’ treatments, to be able to recognise when to seek help, and to have their treatment reviewed at appropriate intervals to establish the need for change, manage risks and identify new goals for treatment if appropriate.
Richard Shawyer continues: “PINNT welcomes the NICE Quality Standard focus on training for patients and families so that those who can self-manage their therapies at home are equipped to do so, recognising that there will always be a group of patients requiring constant nursing care. The issue remains for those self-managing at home of being able to find and access appropriately trained medical and nursing help when it is needed. Out of hours and weekend provision is patchy at best and when this support is hard to access, patients tend to ignore small problems which may then become large ones - potentially putting themselves at greater risk.”
With the overall NHS drive to self-management, the experience of some patients on artificial nutrition may be that the arrangement of regular reviews is reduced, replaced instead by patient driven requests or the need to sort problems.
“This means that some of us,” says Richard Shawyer, “may find that we are unable to discuss changes to or adaptations of our therapies which could improve our well-being, or indeed potentially reduce the risk of complications due to non-compliance or uncertainty.”
PINNT welcomes the information that NICE intends to provide for patients. To complement this and to help ensure that all on artificial nutrition and their families know what they should expect to receive from health and social care providers, the charity will create its own Quality Standard Checklist once the charity has had sight of the NICE information. This will be uploaded to the website when ready, circulated direct to PINNT members and promoted via the health and care media and networks. PINNT is working hard to create more local PINNT groups to meet the growing demand from patients on all types of artificial nutrition for the experienced support the charity provides.
Richard Shawyer concludes: “PINNT commends the effort and time that has been invested in creating this new NICE Quality Standard and will endeavour to play its part in helping to ensure that awareness is raised of its aims and its benchmarks are implemented to the benefit of all receiving artificial nutrition therapy.”
To celebrate its 25th Anniversary, membership of PINNT is currently free of charge, although a donation is welcome to cover the costs of producing and despatching the comprehensive membership pack. Full details and information on PINNT, its activities and local groups, and how to make a donation are available on the charity’s website www.pinnt.com. Offers of help and all enquiries should be directed to firstname.lastname@example.org.