Home Artificial Week 2014



DAY 7 BAPEN

BAPEN is a Charitable Association that raises awareness of malnutrition and works to advance the nutritional care of patients and those at risk from malnutrition in the wider community.

BAPEN brings together the strengths of its Core Groups to raise awareness and understanding of malnutrition in all settings and provides education, advice and resources to advance the nutritional care of patients and those at risk from malnutrition in the wider community.

www.bapen.org.uk

"We pledge to run a 'Commitment to Act' pledge campaign to engage with our partners and all parts of the health and social care system to deliver improvements in nutritional care for patients. We will track the pledges made and publish our progress."

Patient Stories

Sam

Nick


DAY 6 BSPGHAN

BSPGHAN is a professional organisation with the specific roles of promoting research, training and standards of clinical practice for health professionals and scientists in paediatric gastroenterology, hepatology and nutrition.

BSPGHAN provides professional leadership and promotes standards of care for children with nutritional, gastrointestinal and hepatological disorders.  Its membership includes consultants and specialist trainees in paediatric gastroenterology, hepatology and nutrition as well as specialist dietitians, nurses and nutrition pharmacists. The society supports research, training and education for members and the development of standards of care for children with nutritional disorders; it also gives advice and support to implement child-centred strategies to deliver nutrition assessment and nutrition support through the Nutrition & Intestinal Failure Working Group.

www.bspghan.org.uk

"BSPGHAN pledge is to have a patient representative for PINNT in all the paediatric home PN specialist medical centres."

Patient Stories

Freya

Peter

 

DAY 5 BPNG

"Feeding Information To Pharmacy" – bringing together pharmacists, pharmacy technicians and scientists from the Health Service, academia and industry sector who have parenteral and/or enteral nutrition as a specialist area or as a key part of their role.

www.bpng.co.uk

 

"The BPNG would like to pledge their support to PINNT in reviewing two important projects over the coming year. The first project will revise previous guidance published, looking at drug administration via enteral feeding tubes. This will provide an up to date reference source for patients and professionals alike to ensure that patients continue to receive the most appropriate medication, ensuring maximum benefit for the administration route available. The second collaboration will ensure that all types of patient will have access to a patient information leaflet about their artificial nutrition support, in particular PN."

 

Patient Stories

Thelma

Ryan


DAY 4 NNNG

The objective of the NNNG is to promote education in nutrition and related subjects for members of the nursing profession, for the public benefit, and especially for the benefit of patients in the hospital and community.

www.nnng.org.uk

 

"We pledge to provide a clear information sheet for patients on HPN being admitted to hospital to inform hospital staff of the care they require."

 

Patient Stories

Emma

Georgina


DAY 3 PENG

The Parenteral and Enteral Nutrition PENG was established in 1983 as a specialist group of the British Dietetic Association (BDA). It is a founder group of BAPEN. Over the years PENG has gained national and international reputation as a recognised authority on both practical and academic aspects of nutritional support. Today, PENG strives to support its network of Dietitians to deliver excellence in nutritional care through appropriate oral, enteral and parenteral nutrition.

www.peng.org.uk

 

"PENG pledge to work with PINNT and other professional bodies to develop a range of resources to guide patients and carers on how to look for, treat or prevent malnutrition and understand the methods of nutrition support available and such resources we will be developing will include sign-posting guides to help people access good nutritional care."

 

Patient Stories

Laura
Laura is on the right with her girlfriend

Lyndsay


DAY 2 PINNT

Supporting patients at home who receive parenteral or enteral nutrition. They offer advice on the practical aspects of day to day living, coping with the treatment at home along with a wide variety of other aspects that people take for granted. PINNT also educate healthcare professionals about life on line from the patients’ perspective and work with manufacturers and service providers to enhance products and services that the patients receives.

pinnt.com

"PINNT pledge to update our ‘Restaurant Card’ and make it available free of charge to all full members of PINNT who wish to receive one."

Stop Press – second pledge from PINNT

"We pledge to set up a Virtual Nutrition Team (VNT) to act as a resource to seek professional support and guidance which will benefit our membership. The VNT will contribute to a number of PINNT activities. We are delighted to announce that this will be chaired by Dr Barry Jones."


Patient Stories

Henry

Sarah


DAY 1 BAPEN Medical

BAPEN Medical is a core group within the British Association for Parenteral and Enteral Nutrition (BAPEN) which is primarily aimed at doctors with an interest in clinical nutrition. Traditionally, we have mainly been a core group of gastroenterologists, GI surgeons and chemical pathologists but we are looking to broaden our membership, in particular, strengthening our links with critical care and other specialties. We actively encourage all clinical staff to join our meetings.

www.bapen.org.uk/about-bapen/bapen-core-groups/bapen-medical
 

'No decision about me without me' - we pledge to work with BAPEN medical members in the clinical networks to meet with our patients and ask them which outcomes are most important to them, and to make small but important changes to open the conversation to improve the nutritional care we provide for patients. We commit to listening to our patients to address 'what matters most' from their perspective, to actively engage patients in making decisions about their care.

Changes may be small such as providing one point of contact / contact telephone number (for use when patients are worried) or asking patients 'what matters to you' or 'what's worrying you' at the beginning of a consultation. Our main aim is to make sure patients are treated as individuals rather than 'an intervention'.

Patient Stories

Jackie

Debbie

Dawn


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